If you'd met Frank Vig, you might have described him as a gentle diminutive, softly spoken hard of hearing grandfather. You might also know him as the co-founder of the Queensland Renal Association (now Kidney Support Network) or the man on the cover of the October 2009 KSN magazine - being celebrated at the World Transplant Games as Australia's oldest living transplant recipient - he was 93.

What many of you may not know, was that he grew up in the railway yards of Budapest, arrived in Brisbane as a refugee following World War II with his wife and 2 young children, was a champion gymnast in Hungary and Australia, is known as Queensland's Father of Gymnastics, had the reputation as the Nation's top gymnastics coach, received an Order of Australia Medal (OAM) and passed away peacefully on 29 December 2009, three weeks after his 94th birthday, his donor kidney of 35 years still going strong.

Frank Vig had a remarkable life. He was an inspiration to those of us fortunate enough to have met him. He never gave up hope, never stopped helping others or stopped giving thanks for his blessed life. Here is just a little about this amazing man, ever humble about his achievements.

Ferenc (Frank) Vig was born in Hungary in 1917. A refugee in his own country after WW I, his family lived in a cattle wagon in the Budapest rail yards for 18 months before a railway house became available. A friend introduced Frank to gymnastics and he was trained by Bela Erody, Hungary's gymnastic representative at the first modern Olympics in Athens. This began Frank on a lifetime involvement in gymnasticswinning numerous local and national Hungarian gymnastic championships until the war interrupted.

After finishing school, Frank worked in various jobs before working at the Budapest International Radio Centre as a communications officer. He was called up by the Army in February 1944 and sent to the front in Poland as a telegraph operator, losing contact with his family for almost a year. When he heard where his family had fled to during the bombing of Budapest, on his word of honour that he would return to his unit, he went to them, and through an extraordinary and perilous journey, saved them by pushbike and by refloating, bailing and paddling a skiff 5km across Lake Balaton (the largest freshwater lake in Europe) away from the advancing Russian tanks. On the other side, by a miracle, a Red Cross train pulled in with wounded soldiers and Frank sent his family on, while he went to find and rejoin his unit.

Frank didn't see his family again until after the war when they lived as refugees upstairs in a barn in Bavaria. Due to the harsh conditions he buried a second daughter, another dying while he was in Poland.

Frank suffered an insect bite during their four years in Bavaria. This caused facial and upper body paralysis, and while the heavy medication administered cured him after 18 months, the side effect of the medication was nephritis, later causing total kidney failure.

Frank and his family chose to emigrate to Australia in 1949. Within 10 days of their arrival in Newcastle, he took up the offer of work in Brisbane, leaving his family temporarily in a refugee camp at Maitland. To fulfil the compulsory two years of manual labour under the Immigration contract, he worked for the City Council Electricity Department, as an assembly-line worker and as a roof painter.

On his first weekend in Brisbane, while trying to find accommodation for his family (they eventually settled in a vacant garage at Morningside) he also went looking for a gymnasium and found the YMCA.

In 1950 and 1951 Frank was the Queensland Gymnastic Champion and was 4th in the First Australian Championship and runner-up the following year, winning Rings and Horizontal Bar. Because of these results he was asked by the YMCA to take over as Director of Physical Education.

Frank introduced new training and coaching methods to Queensland gymnastics and his Queensland Teams dominated the Australian championships 1954-57. He also trained and coached Australian gymnasts for the 1956, 1960 and 1964 Olympic Games. He introduced Women's Gymnastics to Queensland, formed the Queensland Amateur Trampoline Association and from 1956-1961 lectured part time at the University of Queensland Physical Education Department. Franks' only private transportation was his trusty pushbike, until in his late fifties he obtained his driver's licence and first car; giving up his licence finally at 91.

AT the age of 56 his kidneys failed, forcing him to resign from the YMCA and begin dialysis. Nonetheless, Frank finished an accountancy course which he'd been taking part-time, and was employed by a Chartered Accountancy firm, retiring from there at 65. Kidney transplantation had only begun in Queensland in 1969 and initially Frank was precluded from the Kidney transplant waiting list because of his age. However, with the support of former schoolboy gymnasts, now doctors in the kidney transplant team, he received a transplant in 1974. He was the ninety-second kidney transplant recipient in Queensland, and with success rate then at only 50-60% compared to the 90% today, it attests to his strict adherence to treatment, medications, diet and exercise which saw his kidney last 35 years. Up until his death he had Queensland's fourth longest surviving donor kidney, each year sending a cake and card to the P.A. transplant unit in appreciation for another year's life.

In 1981 he co-founded the Queensland Renal Association and was its first President for two years, and Committee member for many more. Among his other passions, he was a strong advocate for registering for organ donation. Frank was also active in Community and Ethnic Affairs, and served for eight years as Secretary of the Hungarian Cultural and Welfare Association. He established a Frank Vig Sportsmanship Trophy awarded to the most deserving Queensland gymnast; and as part of the Hungarian national junior gymnastic championships, the Dr Krasznai Perpetual Trophy in memory of his teammate and well-known coach.

Frank's achievements have not gone unnoticed. His many awards and honours include the Order of Australia Medal in 1996 for sporting and community affairs; the Australian Silver Sports Medal in 2001; and he received in 2006, the Silver Meritorious Cross of the Hungarian Knightly Order of 'Vitez' for 20 years service to the Brisbane Hungarian Community. He was an Honorary Life Member of the Brisbane YMCA with the Brisbane Y-West gymnasium stadium named the 'Frank Vig Gymnastic Stadium' in his honour. He was also made an Honorary Life Member of the Qld Renal, Qld Gymnastics, Qld Trampoline, and the Hungarian Cultural and Welfare Associations. Frank's passing is a great loss to those of us who knew him, and a loss to the community who benefited in so many ways from his boundless energy and enthusiasm. Frank Vig is survived by 4 children, 18 grandchildren and 23 great-grandchildren. He will be sadly missed.

Written by Janelle Colquhoun

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The eight water bottles 19-month-old Luka Woodward used to take to day care would make any camel proud, jokes his mum Debbie, 34, from Shorncliffe in Brisbane. But behind the humour is an exhausted woman waking eight times a night to keep her son alive.

'When Luka was first born he was a happy bouncing baby boy, but at about six months old he developed an abnormal taste for four to six bottles of water a night on top of breast milk,' Debbie says.

'At that styage he was going through about 15 to 18 nappies a day, almost on the hour. I lost count of the number of doctors I went to who told me it was nothiing serious. They said no diabetes was detected or that it may be a viral bug.

'By the time he was one he was the same weight as a six-month-old and was vomiting three times a night.' Eventually Debbie was referred to a paediatrician, who looked at the lethargic, little boy barely able to sit himself up, and told the Woodward family something was terribly wrong.

After numerous tests Luka was diagnosed with a rare genetic renal condition called cystinosis. 'Because our first two children were perfectly normal, we never knew the risk - but apparently if both parents carry the gene every pregnancy means a one in four chance that the baby will be affected,' Debbie explains. 'We picked the wild card in the gene lottery. The condition is very rare and in Australia today there are only 26 other known cases.'

Cystinosis is notoriously hard to diagnose, and often affects children with pale blonde hair and fair skin. 'They often appear anaemic and have episodes of dehydration, which is the first telltale sign,' Debbie says. The crueal wasting disease causes the amino acid cystine to accumulate in cells and form crystals. The crystals can affect nearly every organ in the body but generally strike the kidneys and eyes first.

Luka will experience either partial or full blindness and will have to be on six or seven medications a day for the rest of his life. Doctors have told Debbie that Luka will probably 'not live to be an old man.' But she hopes the kidney transplant he will eventually need may buy him time.

'I just want to highlight the plight of these kids and raise awareness for kidney donations that may benefit children like Luka and others like him down the track,' she says. For Debbie and her husband Darren, every day is a battle as Luka now receives his nutrients nightly through a tube attached to his tummy and still drinks huge amounts of water. His illness also now prevents him going to day care. 'The cost of nappies is enormous, as well as the six odd medications he is on every day,' says Debbie, who averages about four hours sleep a night to keep up with the relentless demands of her little patient.

'I feel guilty I cannot spend as much time with my daughter Jordyn, 7, and my son Garth, 4,' Debbie says. A new drug called Cysteamine also provides a glimmer of hope. 'It helps dissolve the crystals which can prevent organ complications to some degree,' Debbie explains. Despite her exhaustion, Debbie remains positive. 'Watching Luka's little face makes it all worth the effort,' she says. 'And in a brave new world of medical treatments we always have hope.'

Compiled by Jane Worthington

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Since age 10, Janelle has lived with Type I diabetes. This did not stop her pursuing a career as an opera singer and travelling the world. She sang full-time with the Australian Opera, Sydney, and Frankfurt Opera, Germany, before going blind at age 29 from the complications of diabetes. Returning to Brisbane, Janelle established Salubrious Productions, an entertainment and production agency. She continued to accept regular singing and public speaking engagements around Australia and overseas, including the International Diabetes federation World Congress in Paris 2003, the Bermuda Diabetes 25th Gala Celebrations in 2004, an Australian Tourism launch in Seoul Korea, 2005, and an international dialysis meeting in Chicago 2007. She was invited as one of 100 Health Stream delegates to the 2020 Summit in Canberra 2008 and has held numerous board positions including Diabetes Australia Queensland and the Kidney Support Network. She was appointed in August 2008 to the Health Consumers Queensland Ministerial Committee.

With diabetes-related kidney failure Janelle was placed on the kidney/pancreas transplant waiting list in 2001. She was removed from the list in 2004 due to stomach cancer. Undergoing a stomach removal operation and 3 years of dialysis, on 20 July 2008 Janelle was the recipient of a combined simultaneous pancreas kidney transplant. She no longer has the ordeal of 10 hours of daily dialysis and for the first time in 32 years she feels healthy and no longer faces multiple daily injections and blood tests. In October she has been invited to the International Diabetes World Congress in Montreal as speaker for 'Living with Diabetes, a Patient's Perspective of Impaired Kidney Function'.

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